Today is a sad one. I am sure you all recall me telling you about Kayleigh Anne Freeman and that I follow her blog daily. She is a heart baby that has been through 250+ procedures since her birth last June. She was born 1 lb and 1 oz and survived some incredible odds. Well she lost her battle last night. At 9:44 she passed away. I am having a very hard time with this news. I never physically knew her but I have checked in with this family on a daily basis through their blog for the last 7 months or so. I found them while searching for answers about Olivia's condition.

Kayleigh was an example of worst case scenario as far as heart conditions go, exacerbated by the fact that she was 3 months premature and her systems were not stable.

My heart is breaking for this family, as it has in many tough times in the past when things looked grim. Today I am kind of suspended in a state of shock and sadness. Its a parent's worst nightmare.

This hits very close to home as there was only subtle differences between her heart condition and Olivia's. I could not imagine loosing my dear sweet Olivia - I am not sure I could survive that - literally. I am so very grateful that our child is getting stronger every day but I am also so heartbroken for the Freemans. I know that Kayleigh is in a better place now and that she is no longer in any pain or discomfort and that brings me some kind of peace.

I don't know what else to say, all I can do is cry.